Report Release: Disease Burden and Health-related Quality of Life Survey on Leber Hereditary Optic Neuropathy (LHON) Patients in China
The Report Disease Burden and Health-related Quality of Life Survey on Leber Hereditary Optic Neuropathy (LHON) Patients in China was formally published in Hangzhou on March 27th.
ACCESS Health China’s Research and Consultation team participated in the writing of this report. It is the first social research on LHON in China. Through both quantitative and qualitative research, the team conducted a preliminary study on the survival status of LHON patients in China. The report also looked at the global LHON epidemiological research, diagnosis and treatment paths, innovative drug research and development, and admission systems.
Through this research, we proposed relevant policy recommendations, with the hope to fundamentally improve the lives of China’s LHON patients, and to protect the rights of the visually impaired.